I've been trying to think of a way to word this to all of you since we found out yesterday, but I guess I shouldn't wait any longer to forward on the latest news.
We were told that Jason’s GVHD is not making a dent at the leukemia – it, in fact, came through with a vengeance these past few days - and they recommended another round of chemotherapy. This would be to reduce the leukemia enough to give him another boost of his dad’s cells – in the hopes that the GVHD would really kick into high gear. The chances of this working are not very high and would cause Jason a great deal more pain and anguish. In our opinion, it would only prolong the inevitable. So, we said no to any further treatment. After 1 ˝ years of aggressive therapy, J has decided - mentally and physically - that enough is enough. His well-being and demeanor are even significantly diminished from just this weekend. Hopefully today J will start steroids to treat the GVHD (thereby insuring the spread of his leukemia) and some other concoctions to help alleviate some of his suffering. We've been told to expect only another couple of months.
I'm sorry I can't write a little more right now, I'm just so tired myself anymore. All our love, Mel